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Organizations of, by, and for people with hearing loss

Coping with hearing loss is an ongoing challenge. Fortunately, many organizations have been established by and for people with hearing loss. These organizations tend to vary somewhat in mission and focus, but all have the primary purpose of assisting hard of hearing, late deafened, and oral deaf persons. For a thorough discussion of the kinds of issues these organizations deal with, see our issues that affect hard of hearing, late deafened, and oral deaf people discussion.

The following links provide general information about these organizations and generally contain a link to their website.

Alexander Graham Bell Association works to empower deaf and hard of hearing people.

The American Association of the Deaf-Blind is an organization of, by, and for people with both hearing and vision loss.

The American Tinnitus Association focuses on the relief, prevention, and eventual cure of tinnitus.

The Association of Adult Musicians with Hearing Loss is for individuals who have significant hearing loss but enjoy making music. The organization strives to show the world that loss of hearing does not have to mean the loss of music.

Association of Late Deafened Adults (ALDA) focuses on education and support for late-deafened persons.\

The Association of Medical Professionals with Hearing Loss (AMPHL)supports medical professionals with hearing loss.

The Captioned Media Program loans captioned videos to people with hearing loss, and even pays the postage both ways.

The Coalition for Movie Captioning advocates for movies to be fully accessible to people with hearing loss.

The Deaf Bilingual Coalition was formed in 2007 to promote the teaching of ASL to kids with hearing loss.

DeafGA is a new online group for attorneys and law students with hearing loss.

The Ear Foundation focuses on education and support for persons with Meniere’s Disease.

Hear the World is a global initiative created by Phonak to raise awareness of the importance of hearing.

Hearing Loss Association of America (HLAA) focuses on providing information and support for people with hearing loss..

The International Federation of Hard of Hearing People (IFHOH) is an international organization working for the rights of hard of hearing and late-deafened people.

The National Association of the Deaf focuses on safeguarding the accessibility and civil rights of 28 million deaf and hard of hearing Americans in education, employment, health care, and telecommunications.

The Ohio Coalition for Hearing Health Awareness is a state organization with a new and refreshing approach to assisting people with hearing loss. You’ll want to read about this!

SayWhatClub is an online organization that provides support and information for persons who are hard of hearing or late-deafened.

Telecommunications for the Deaf, Inc. (TDI) is a national advocacy organization focusing its energies and resources to address equal access issues in telecommunications and media for people who are deaf, hard-of-hearing, late-deafened, or deaf-blind.

The John Tracy Clinic is a private, non-profit education center founded by Louise Treadwell Tracy in 1942. Its mission is to offer hope, guidance and encouragement to families of infants and preschool children with hearing losses by providing free, parent-centered services worldwide.

The Western Symposium on Deafness is a biennial conference sponsored by the Western Regional Outreach Center and Consortia (WROCC) at California State University, Northridge (CSUN).

The World Federation of the Deaf is an international organization that works to improve the lives of people with hearing loss throughout the world.

January 2009 – Hearing Loss Organizations Provide Recommendations to Obama Administration

August 2009 – Let Them Hear Foundation Unveils Individuals with Disabilities Education Act Website

November 2009 – CHC Launches “Ask the Experts”

January 2010 – National Hearing Health Organizations: Financial Overview

August 2011 – House Research Institute Celebrates 65th Anniversary

September 2011 – Deafness Research Foundation Becomes Hearing Health Foundation

November 2011 – Seeking Public Input on the 2012-2016 Draft NIDCD Strategic Plan

December 2011 – Association of Medical Professionals with Hearing Loss Wants Your Help to Establish State Chapters 

Flying start for the deaf

July 2006

Editor: Looking for a fundraiser that’s a bit out of the ordinary? Then check out what the folks at RNID are doing!

WOULD-BE superheroes are being invited to fly through the air. The Royal National Institute for Deaf People (RNID) is inviting adventurous people from Cambridgeshire to sign up for a skydive and help change the world for deaf and hard of hearing people. Taking place at weekends at airfields near Peterborough and Chatteris, the RNID super skydives from approximately 10,000 feet are the ideal opportunity for Superman wannabes to fly through the air and raise money for charity. The skydiving is free to prospective fundraisers who raise a minimum of £375 for RNID, the national charity representing nine million deaf and hard of hearing people in the UK.   Full Story

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Seeking Public Input on the 2012-2016 Draft NIDCD Strategic Plan

November 2011

The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, has released for public comment a draft of our 2012-2016 NIDCD Strategic Plan. Comments may be submitted between October 24 and November 23, 2011.

The NIDCD supports and conducts research and research training in the areas of hearing and balance; smell and taste; and voice, speech, and language. The Strategic Plan serves as a guide to the NIDCD in prioritizing its research investment, illustrates the current state of the science, and highlights recent advances in the communication sciences. The draft plan presents a series of goals and objectives that represent the most promising research needs within the NIDCD’s mission areas.

The NIDCD anticipates that the finalized plan will be published on the NIDCD website in January 2012.

Read the draft document and submit comments here:www.nidcd.nih.gov/about/plans/strategic/Pages/publiccomments.aspx